Bella with "her boys" and cousin Collin Easter Morning.
We had a nice weekend with family over Easter. Bella really has been doing well other than a cold and low Hemoglobin. I knew over Easter Weekend that she would most likely need blood on Monday morning and I was right. She was looking pale, and although she is a very good baby, she was exceptionally calm. Her hemoglobin was the lowest its been since December, 6.6. So hour 1 hour apt turned into an all day affair at the hospital on Monday.
The big news is.....her team of doctors are discussing starting MAINTENANCE!!!!! Could a more normal life and schedule be around the corner? We are so excited. Irregardless, the worst of the the chemo is over. We are also discussing with doctors on removing her broviach and replacing it with a port so that she can be active in the water this summer. About 6 more weeks till "The Cottage" opening....we are counting down the days.
We are also talking about our "Forever Family Day" and what we want to do for that. For us, that day is May 3rd, that is the day we walked off the airplane and placed Bella in to the arms of her brothers, Grandparents, Aunts, Uncles and Cousins. I think that pretty much sums up "family day".
As always, I love that you check in.
Blessings!
The big news is.....her team of doctors are discussing starting MAINTENANCE!!!!! Could a more normal life and schedule be around the corner? We are so excited. Irregardless, the worst of the the chemo is over. We are also discussing with doctors on removing her broviach and replacing it with a port so that she can be active in the water this summer. About 6 more weeks till "The Cottage" opening....we are counting down the days.
We are also talking about our "Forever Family Day" and what we want to do for that. For us, that day is May 3rd, that is the day we walked off the airplane and placed Bella in to the arms of her brothers, Grandparents, Aunts, Uncles and Cousins. I think that pretty much sums up "family day".
As always, I love that you check in.
Blessings!
14 comments:
Great pic!!!!!!!!!! praying as always for you !!!
hugs,leslie
Beautiful pic!! I'm continuing the prayers for sweet Bella!!
maintenance is a wonderful word!!! hoping for each day to get better & better.. have fun planning your forever family day!!
alex
That is the cutest photo ever! I love that she is surrounded by these boys that will forever cherish her. So cute! And, I got chills when I read about maintenance. I will pray that happens ASAP!!!!!!!
Thank you for sharing! What wonderful news. I can't wait to see cottage pictures soon - those cute little arms splashing will be the best!
We love you all!
I'm so excited to hear this news!! Bella is always in our thoughts and prayers! Love the picture!
HI Friend....Just returned from New Orleans and had to check in on you and the gang. Call me this week so we can get your trip tentatively scheduled! Love you!
She is so cute:)
Hi, this is my first visit to your blog. What a beautiful family. We also had a young child who was medically fragile. I can identify with some of your challenges. My prayers are with you and may there be many happier days just ahead.
Loved the pictures. Sending lots of prayers.
Awesome pic! I hope a more "normal" schedule is in place soon!
Love that picture, beautiful children. God Bless
What a huge blessing to be talking about "maintenance". Just like we talked about through the entire adoption process- "God is faithful. He is in control. And it is already done!"
I love it! It is just a blessing to see how he has used Bella's entire life to bring so many others closer to Him. What a story Sweet Bella has already!!!
I so miss chatting with you. You and Bella are in my heart daily...
Love, Jenifer
she is beautiful..and how lucky is she to have big brothers to always protect her..godbless your family
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