Our life is nothing short of an adventure...

Wind in our hair and screams of delight but also unpredictable turns and unknown outcomes. We are a family of six; Dave, Susie, Nate, Jake, Sam, and Bella.

God has been faithful in our marriage and through the birth and blessings of our boys.

God has been faithful during our adoption journey and united Bella with us in May of 2008. We were privileged to visit with Bella's birth mother; therefore, Bella's family in Guatemala will always be dear to our hearts.

On October 16, 2008, Bella was diagnosed with ALL Leukemia. We are now battling the disease with 2 years and 3 months of treatment. We believe God will continue to be faithful!

Our family is committed to living life to the fullest...even on the hard days. Thank you for checking in and journeying with us!


Wednesday, April 15, 2009

Transfusion ..... Maintenance?


Bella with "her boys" and cousin Collin Easter Morning.

We had a nice weekend with family over Easter. Bella really has been doing well other than a cold and low Hemoglobin. I knew over Easter Weekend that she would most likely need blood on Monday morning and I was right. She was looking pale, and although she is a very good baby, she was exceptionally calm. Her hemoglobin was the lowest its been since December, 6.6. So hour 1 hour apt turned into an all day affair at the hospital on Monday.

The big news is.....her team of doctors are discussing starting MAINTENANCE!!!!! Could a more normal life and schedule be around the corner? We are so excited. Irregardless, the worst of the the chemo is over. We are also discussing with doctors on removing her broviach and replacing it with a port so that she can be active in the water this summer. About 6 more weeks till "The Cottage" opening....we are counting down the days.

We are also talking about our "Forever Family Day" and what we want to do for that. For us, that day is May 3rd, that is the day we walked off the airplane and placed Bella in to the arms of her brothers, Grandparents, Aunts, Uncles and Cousins. I think that pretty much sums up "family day".

As always, I love that you check in.

Blessings!



14 comments:

Leslie said...

Great pic!!!!!!!!!! praying as always for you !!!

hugs,leslie

Robyn said...

Beautiful pic!! I'm continuing the prayers for sweet Bella!!

Alex and Sam said...

maintenance is a wonderful word!!! hoping for each day to get better & better.. have fun planning your forever family day!!

alex

Jaimee said...

That is the cutest photo ever! I love that she is surrounded by these boys that will forever cherish her. So cute! And, I got chills when I read about maintenance. I will pray that happens ASAP!!!!!!!

Mallory said...

Thank you for sharing! What wonderful news. I can't wait to see cottage pictures soon - those cute little arms splashing will be the best!

We love you all!

Vanessa said...

I'm so excited to hear this news!! Bella is always in our thoughts and prayers! Love the picture!

Cheri (prounounced Cherry...really!) said...

HI Friend....Just returned from New Orleans and had to check in on you and the gang. Call me this week so we can get your trip tentatively scheduled! Love you!

Mylla said...

She is so cute:)

Karen said...

Hi, this is my first visit to your blog. What a beautiful family. We also had a young child who was medically fragile. I can identify with some of your challenges. My prayers are with you and may there be many happier days just ahead.

Rhonda said...

Loved the pictures. Sending lots of prayers.

Alisha said...

Awesome pic! I hope a more "normal" schedule is in place soon!

Tanya said...

Love that picture, beautiful children. God Bless

Brian and Jenifer said...

What a huge blessing to be talking about "maintenance". Just like we talked about through the entire adoption process- "God is faithful. He is in control. And it is already done!"

I love it! It is just a blessing to see how he has used Bella's entire life to bring so many others closer to Him. What a story Sweet Bella has already!!!

I so miss chatting with you. You and Bella are in my heart daily...

Love, Jenifer

bearer of three said...

she is beautiful..and how lucky is she to have big brothers to always protect her..godbless your family