Bella started Delayed Intensification yesterday, this is phase 4 of 6. This next 60 days is a repeat of the first two months with a couple additional chemo's. Bella is also on Steroids again, however, they are 7 days on 7 days off, rather than a full 30 days. So far, she is doing really good, she's just really tired and does not have a big appetite. The doctors say she will lose her hair this round...we shall see, they said that the first 2 months and she still has a decent head of hair. They also say her counts will drop again thus making her prone to infection and illness...so we will be housebound again in a couple weeks. Monday she receives another bone marrow aspiration, I don't even know what number this is now, she has had so many I have lost track. We are so thankful to be at one of the top notch hospitals in the country for Hematology and Oncology, Bella has always been sedated for these procedures, she does not even know what happens. It's always a little entertaining to me as she does not like being knocked out and tries to fight it. Her eye's get really big and she gives me this angry look, I count to 5 and she's always out by 6. She is always miss happy lovey girl when she wakes up.
On a side note, I just completed week 3 of training for a 5k I am doing in May with my cousins and sister-in-law. This is huge for me as I have disliked running very much in the past...I am group exercise all the way. It's getting easier, I am actually starting to believe that I will be able to accomplish 3 miles without stopping to walk. A week ago, I just couldn't even imagine it, but I knew that "all things are possible with God".
I leave you this evening with a recent video of Bella playing Jake's drums last week. She was so pleased with herself and made sure to hit every drum and symbol.
God bless you all, I pray you hear God's whisper as to you how much we appreciate you, we treasure all of you.
20 comments:
We continue to keep Bella and you and the family in our thoughts and prayers! She is just precious!!
Look how cute you are, Bella, playing the drums so gracefully! You are all girl!!
Praying and believing daily for perfect health!
Love to you, Susie!!!
Bella looks so big in the video. I'll be keeping all of you in my prayers through this next phase and believing God will keep Bella's hair in her head.
Love the video! I'm so happy that she's doing so well with her treatments, and so proud of you for even thinking about, much less attempting to run a 5K. I could probably do a 50 yard dash . . . Love to you!
Praying for bella!!!
I hate excerising BUT darn it i better start!! I wish ohio wasnt so cold outside for 9month out of the year!!!
Hugs,leslie
That is precious! Go Bella go!
Music is so therapeutic-something about beating a drum just reaches deep. Can't wait to hear more. I'm sure watching her brother do it makes her just want to get in there and compete! How blessed she is to have her brothers to lead the way!
My family is still believing for Bella!! You guys are in our prayers each day!!
I am continuing the prayers for Bella and your entire family!!
Praying for continued success with Bella's treatment today. She is so sweet playing with the drums... love it!
susie,
praying for bella & hoping this round of treatments is successful without much discomfort
woohoo on your run... good lock
alex
Way toooo cute! Keeping you all in our prayers. Good luck in training :-)
Sounds like life is rolling along nicely.We will keep Bella in our prayers as she begins this next phase.Of course Zoey is on a different protocol because she has AML,but ... the hair thing is so bizarre to me.She is about to begin round 4 of 5 and still ... all her hair.they say the the Down syndrome children do it in their own unique way..the story of Zoey's life .. unique!Bella is so darling and such a bright light radiates from her precious face.Keep up the running.It grows on you.I so wish I could get back to it.Month long stays at a time in the hospital doesn't make it easy.Peace and strength to you all .. especially Miss Bella.
"When you pass through the waters, I will be with you; and through the rivers, they will not over overflow you. When you walk through the fire, you will not be scorched, nor will the flame burn you. For I am the Lord your God, The Holy One of Israel, your Savior." Isaiah 43: 2-3
As I was thinking about this scripture, my mind drifted to the story of shadrack, Meshach and Abednego, and this scripture in particular.
"And the princes, governors, and captains, being gathered together, saw these men, whose bodies the fire had no power on, nor was a hair of their head singed, neither their coats changed, nor the smell of fire had passed on them." Daniel 3:27
Not only did God keep them from being burned, but they came out not even smelling of smoke! Doesn't that just make you want to jump up and shout Praises to our Savior? Wow! How great is our God!
As Bella walks through her own kind of fire, we're believing she comes out with not even a single hair singed and smelling sweeter than she did going it! For that is the power of our Mighty God!
Love in Christ,
Dana Burk
Praying for little Bella and all of you through this phase. Abbey starts DI a week from Thursday. I can't wait to be done with this phase!! I check back often to see how she's doing and always enjoy reading your blog and connecting to you and your family. Your family portraits are soooo beautiful!!! What a blessed family you are :)
Glad to hear Bella is still feeling good, I will continue to pray for her as she goes through this next round of Chemo.
Good for you running a 5k, way to go!!!
Blessings to you and your family of Blessings. Ever time I see Bella...I see Josh & Anna.
LOVE IT!!!!
BELLA IS JUST TOO SWEET.
IT REALLY DOES WARM MY HEART.
KEEPING YOU IN PRAYER.
Praying that this round goes smoothly and is over quickly for all! Also praying that Bella is continues to be as strong as she has all along. And way to go on your running! That is impressive. Love the drum playing too, she's such a doll!
-Jaimee
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