Our life is nothing short of an adventure...

Wind in our hair and screams of delight but also unpredictable turns and unknown outcomes. We are a family of six; Dave, Susie, Nate, Jake, Sam, and Bella.

God has been faithful in our marriage and through the birth and blessings of our boys.

God has been faithful during our adoption journey and united Bella with us in May of 2008. We were privileged to visit with Bella's birth mother; therefore, Bella's family in Guatemala will always be dear to our hearts.

On October 16, 2008, Bella was diagnosed with ALL Leukemia. We are now battling the disease with 2 years and 3 months of treatment. We believe God will continue to be faithful!

Our family is committed to living life to the fullest...even on the hard days. Thank you for checking in and journeying with us!


Monday, October 27, 2008

Things Have Changed


Bella's Broviach (port) , this thing gives me the heebee geebies. It reminds me of the umbilical chord, if she pulls on it and it comes out...will her insides spill out? I have to use a syringe daily to insert a saline solution and antibiotic and change her dressing weekly. We tried bath time last night, that did not go so well. Its difficult to not get it wet. So we will only do bath time once a week and have a "wash cloth" bath the rest of the week.


Life is different, these are Bella's daily medications and Broviach equiptment. She takes 5 medications a day, each one is given 2-3 times a day. Because Leukemia attacks her white blood cells, she is highly suseptable to illness, so being "germ free" is a big ordeal in our house. Now remember, I am a cottage girl with 3 boys, this is a whole new life style for us. My hands are cracking from all the hand washing and Purrel Lotion.

This is life for the time being, but it is "but a time". This too shall pass, so on with the journey we go, the journey to healing and all the miracles and blessings God has in store for our family and Bella. It's not the journey we planned on or desire, but we are confident that God is doing a "good work in us", and that He will prevail in this circumstance. "For all things are possible with God". He is good, all the time.

Bella is really doing well, we are grateful that her stomach is tolerating the chemo so well. The oral chemo makes her very emotional, edgy and irritable...in general, she cries a lot and the smiles during the day are few. Then, every night around 8 pm she becomes "party girl" and she is all smiles and silly. At that point, I am exhausted and ready for bed, but its hard to put her down as we look forward to those moments of joy and her normal personality.

Our Halloween Party was a huge success and we had a great time. I will be posting pics tomorrow.

Thanks for checking in and leaving your messages. Our spirits are truly lifted through your postings and emails.

God Bless!

18 comments:

Chris & Lindsey Wheeler said...

Sweet girl....I am praying.

Lindsey

Carla said...

You are all in my daily prayers.

Stacy said...

Thinking of you tonight. I bet you are hanging out with your boys and enjoying your "party girl" about now.
I read this verse tonight and thought of you...
Psalm 29:11: "The LORD gives strength to his people; the LORD blesses his people with peace."

Great to "talk" with you today!

XOXO,
Stacy

Vanessa said...

I'n glad to know sweet Bella still has those moments of smiles thtsa light up the room!! Continuing to life her and your family in my prayers!

Candy said...

Oh girl...WOW that is a LOT of MEDS...I would wig out about the PORT too. Oh girl we just love you and you all are in our thoughts and prayers. HUGS

~Issy said...

Keeping you and your family in my thoughts and prayers...and i am so happy to know that little Bella does have moments of smiles.

Magen said...

She is so beautiful, and I am sure her smiles are such a blessing in these tough days. I will continue to pray for Bella.
God Bless

Cheri (prounounced like the tree, like the fruit, as in Cherry Pie) said...

You need a Wal-Mart cart for all the meds/equipment Bella Boo needs. I bet W-M will let you have one for the house which will make things easier to move to where/when you need them!ha! God bless this child. The port thing is wild but makes life so much easier when going through this. Praying non-stop, friend. Cheri

lisa kindred said...

You probably never could have imagined yourself with this medication responsibility awhile back. God does great things in people. It is obvious Bella has an incredible mommy here. I keep thinking god brought her to you so she could be healed with the kinds of tx we have in the US. She was chosen to be with you so she could get thru this.

Please know we are praying for Bella and all of your family. Her precious picture is a reminder to pray. I am sharing your story to so many other believers can join in lifting this sweet one up. Hope you find comfort in knowing we (many adoptive families) love and care deeply about her precious life.

Love, LIsa

Madelyn's Mommy said...

I will be praying for sweet Bella, and your family.

Andrea

Mary Ann said...

Poor poor baby girl! I pray all that medicine with Gods hand heals you!!! Susie, I added Bella and her picture to my blog asking prayers for her! I hope that was ok. Lots of Love!

ClarkFamily said...

Oh Sweet Sweet Bella - my heart is broken for you but to see your solemn eyes and that sweet face I just know you will win this fight ... but to se eyour teeny tiny tummy with that broviac - whata brave girl! Our thoughts and prayers remain with you!

Hugs from Minnesota!

Rebekah, Jaden & Baby#2 top

Michelle Riggs said...

Wow, Your house looks like our home. So sorry that you had to join the "club" that noone wants to join.

You are doing a wonderful job taking care of your precious daughter.

Praying for you and your family.

nikki said...

Praying for you and sweet Bella daily!!

Gail said...

WOW!!! You have a lot to do for you sweet little girl!! Susie, I don't know if you realize what an inspiration you are to others. You may not feel like anyone at times but I sure admire you. However, I do know it is God working through you that allows you to be able to do all you must do. I'll keep praying for strength and peace for you.
Gail

The Jeltemas said...

Oh Susie, the heebee jeebees is right, my tummy did a little flip when I saw sweet Bella's tummy being invaded...what an amazing little girl she is...and isn't it just like the Lord to have her in your hands in time to be her support and love...God is so amazing and as you say He is never late... I praise God that you have Bella home with you and that she has all of you to love on her and help her through this journey...God IS faithful. Lifting you all up in prayer, trusting God...

The M. Herndon Family said...

Do you sew or are crafty at all? I am a pediatric nurse and work at a Children's Hospital in the ER. I've seen a lot of kids with central lines (Broviac's) just like Bella's. There are some kiddos who have this cloth contraption that the Broviac is placed in, so it isn't hanging as much. This might make it easier on Bella and also might help you to not be so freaked out by it--and the thought of it getting pulled out. I will try to find one at our Hem/Onc clinic at my hospital. If I can't find one, I'll attempt to describe to you how it works and maybe you can make one!

Carrie S said...

Praying for precious Bella and strength and comfort to all of you. God is with you and holding your hands.

Carrie